
Evidence Tools
Health Care Transition
Introduction
This toolkit summarizes content from the Health Care Transition Evidence Accelerator and the MCHbest database. The peer-reviewed literature supporting this work can be found in the Established Evidence database. Use the resources below as you develop effective evidence-based/informed programs and measures.
From the MCH Block Grant Guidance. The transition of youth to adulthood, including the movement from a child to an adult model of healthcare, has become a priority issue nationwide as evidenced by the 2011 clinical report and algorithm developed jointly by the AAP, American Academy of Family Physicians and American College of Physicians to improve healthcare transitions for all youth and families. Poor health has the potential to impact negatively the youth and young adults’ academic and vocational outcomes. Over 90 percent of children with special health care needs now live to adulthood but are less likely than their non-disabled peers to complete high school, attend college or to be employed. Health and health care are cited as two of the major barriers to making successful transitions.
Goal. To increase the percent of adolescents with and without special health care needs who have received services to prepare for the transitions to adult health care.
Note. Access other related measures in this Population Domain through the Toolkits page.
Detail Sheet: Start with the MCH Block Grant Guidance
DEFINITION
Numerator:
Number of adolescents with and without special health care needs, ages 12 through 17, who are reported by a parent to have received services to prepare for the transition to adult health care (time alone with a health care provider, active work to gain skills to manage health/health care or understand changes in health care at age 18, discussed shift to adult providers if needed)
Denominator:
Number of adolescents, ages 12 through 17
Units: 100
Text: Percent
HEALTHY PEOPLE 2030 OBJECTIVE
Related to Adolescent Health (AH) Objective R01: Increase the proportion of adolescents (aged 12 to 17 years) with and without special health care needs who receive services to support their transition to adult health care. (Research) ;Related to AH Objective 02: Increase the proportion of adolescents who speak privately with a physician or other health care provider during a preventive medical visit. (Baseline: 38.4% in 2016-17, Target: 43.3%)
DATA SOURCES
National Survey of Children's Health (NSCH)
MCH POPULATION DOMAIN
Children with Special Health Care Needs or All Adolescents (CSHCN and non-CSHCN)
MEASURE DOMAIN
Clinical Health Systems
1. Accelerate with Evidence—Start with the Science
The first step to accelerate effective, evidence-based/informed programs is ensuring that the strategies we implement are meaningful and have high potential to affect desired change. Read more about using evidence-based/informed programs and then use this section to find strategies that you can adopt or adapt for your needs.
Evidence-based/Informed Strategies: MCHbest Database
The following strategies have emerged from studies in the scientific literature as being effective in advancing the measure. Use the links below to read more about each strategy or access the MCHbest database to find additional strategies.
Evidence-Informed |
Evidence-Based |
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Mixed Evidence |
Emerging Evidence |
Expert Opinion |
Moderate Evidence |
Scientifically Rigorous |
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Field-Based Strategies: Find promising programs from AMCHP’s Innovation Hub
Emerging:
- Directory of Resources (National; 2023)
- Interagency Transition Coalition (CO; 2012)
- Youth Leadership Development (RI; 2012)
- Youth Advisory Council (RI; 2018)
- Parent and Teen Education (WI; 2022)
Promising:
- Adolescent-Centered Care Model (National; 2018)
- HCT within a Managed Care Plan (DC; 2016)
- Teen Consultant Program (WI; 2020)
- Workplace Internship for Youth (RI; 2018)
Best:
- Electronic Medical Record HCT Planning Tool (TX; 2019)
- High School Transition Program (OR; 2011)
- Teen Educator Program (WI; 2020)
2. Think Upstream with Planning Tools—Lead with the Need
The second step in developing effective, evidence-based/informed programs challenges us to plan upstream to ensure that our work addresses issues early and is measurable in “turning the curve” on big issues that face MCH populations. Read more about moving from root causes to responsive programs and then use this section to align your work with the data and needs of your populations.
Move from Need to Strategy
Use Root-Cause Analysis (RCA) and Results-Based Accountability (RBA) tools to build upon the science to determine how to address needs.
Planning Tools: Use these tools to move from data to action
3. Work Together with Implementation Tools—Move from Planning to Practice
The third step in developing effective, evidence-based/informed programs calls us to work together to ensure that programs are implementable and moveable within the realities of Title V programs and lead to improved health outcomes for all people. Read more about implementation tools designed for MCH population change and then use this section to develop responsive strategies to bring about change that is responsive to the needs of your populations.
Additional MCH Evidence Center Resources: Access supplemental materials from the literature
- Find field-based resources focused on health care transition relevant to Title V programs in the MCH Digital Library.
- Search the Established Evidence database for peer-reviewed research articles related to strategies for health care transition.
- Request Technical Assistance from the MCH Evidence Center
- MCH Evidence Center Frameworks and Toolkits:
Implementation Resources: Use these field-generated resources to affect change
Practice. The following tools can be used to translate evidence to action to advance this NPM:
- Transition to Adult Health Care (PACER’s National Parent Center on Transition and Employment). This resource offers guidance and videos on HCT.
- Condition-Specific Tools (American College of Physicians Pediatric to Adult Care Transitions Initiative). This resource offers condition specific information for the transition process.
Partnership. The following organizations focus efforts on supporting healthcare transition:
- Got Transition. Aims to help youth and young adults move from pediatric to adult health care.
- The Center for Transition to Adult Health Care for Youth with Disabilities. Empowers youth with intellectual and developmental disabilities ages 12-26 to direct their own transition.
The following resources reinforce the need to improve the process of pediatric-to-adult HCT and highlight promising practices:
- Transitions of Care from Pediatric to Adult Services for Children with Special Healthcare Needs
- Support for Transition from Adolescent to Adult Health Care Among Adolescents with and without Mental, Behavioral, and Developmental Disorders — United States, 2016–2017
- Strengthening the Adult Primary Care Workforce to Support Young Adults with Medical Complexity Transitioning to Adult Health Care
- Health Care Transition in State Title V Programs: A Review of 2021 Block Grant Applications/
2019 Annual Reports and Recommendations
Additional Resources:
- Got Transition/Center for Health Care Transition Improvement: An MCHB-funded technical assistance resource center, this project supports NPM 12 topic areas.
- General Transition Resources:
- Health Care Transition in State Title V Programs: A Review of 2021 Block Grant Applications/ 2019 Annual Reports and Recommendations
- Updated Six Core Elements of Health Care Transition™ 3.0
- Implementation Guides and additional information
- Six Core Elements of Health Care Transition
- Transitioning Youth to Adult Health Care Services
- Transitioning to Adult Approach to Health Care Without Changing Providers
- Integrating Young Adults in Adult Health Care
- Validated Transition Tools
- Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home
- State Transition Information:
- Baseline Assessment of Health Care Transition Implementation in Title V Care Coordination Programs
- Health Care Transition in State Title V Program: A Review of 2018 Block Grant Applications & Recommendations for 2020
- State Title V Health Care Transition Performance Objectives and Strategies: Current Snapshots and Suggestions
- General Transition Resources:
- Implementation Toolkit for National Performance Measure 12 (AMCHP). This toolkit contains examples of state strategies being used to address NPM 12 in Title V programs.
- Preparing Youth with Intellectual and/or Developmental Disabilities When Transitioning to Adulthood on Medical Care Decision-Making (American Academy of Pediatrics). This policy statement offers essential guidance to help pediatricians support these young adults and their caregivers by emphasizing the importance of transition planning. Recommendations include forming support teams that bring together youth, caregivers, teachers, and pediatricians, starting conversations and planning between ages 12 and 14.
References
Introductory References: From the MCH Block Grant Guidance
1 White PH, Cooley WC; Transitions Clinical Report Authoring Group; American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians. Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home. Pediatrics. 2018;142(5):e20182587. Pediatrics. 2019;143(2):e20183610. doi:10.1542/peds.2018-3610.
2 American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians- American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110(6 Pt 2):1304-1306.