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Strengthen the Evidence for Maternal and Child Health Programs

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Evidence Tools
MCHbest. Transition.

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Strategy. Transfer Assistance + Integration into Adult Care

Approach. Provide transfer assistance and integration into adult care to increase the percent of adolescents who received services to prepare for the transition from pediatric to adult health care

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Overview. Combining transfer assistance with integration into adult care creates a critical bridge for youth moving from pediatric to adult healthcare systems. Multicomponent interventions continue to grow in prominence and show value in improving transitions to adult health care through coordinated support across the transfer period.[1] Transfer assistance elements include providing letters of referral and coordination of referrals between pediatric and adult providers, as well as transfer summaries that communicate essential medical information to the new adult care team. Integration into adult care involves structured processes such as self-care skills assessment, welcome and orientation procedures, and ongoing monitoring to ensure successful engagement with the new provider. A coordinated care pathway that includes specialized pediatric care leading to a multidisciplinary adult team accustomed to managing complex disability can be associated with better health status and sustained engagement in care.[1] Title V programs can facilitate these transitions by developing partnerships between pediatric and adult care systems, creating standardized communication protocols, and supporting transition navigators who guide youth through the transfer process. This two-component approach addresses both the logistical challenges of finding and connecting with adult care and the adaptation challenges of integrating into a new care environment.

Evidence. Emerging Evidence. Strategies with this rating typically trend positive and have good potential to work...

Access the peer-reviewed evidence through the MCH Digital Library or related evidence source.

Potential Data Sources. Data to support this strategy can be accessed through:

  • Qualitative feedback on transfer and integration experiences
  • Adult provider reports on preparedness and integration
  • Evaluation data related to transfer completion and adult provider enrollment rates

Outcome Components. This strategy has shown to have impact on the following outcomes (Read more about these categories):

  • Access to/Receipt of Care. This strategy increases the ability for individuals to obtain healthcare services when needed, including preventive, diagnostic, and treatment services.
  • Timeliness of Care. This strategy promotes delivery of healthcare services in a timely manner to optimize benefits and prevent complications.
  • Patient Experience of Care. This study improves individuals' perceptions, feelings, and satisfaction with the healthcare services they receive.

Detailed Outcomes. For specific outcomes related to each study supporting this strategy, access the peer-reviewed evidence and read the Intervention Results for each study.

Intervention Type. Case Management (Read more about intervention types and levels as defined by the Public Health Intervention Wheel).

Intervention Level. Individual/Family-Focused

Examples from the Field. Access descriptions of ESMs that use this strategy or aligned components.

Sample ESMs. Here are sample ESMs to use as models for your own measures using the RBA framework (see The Role of Title V in Adapting Strategies).

Quadrant 1:
Measuring Quantity of Effort
(“What/how much did we do?”)

  • Number of adolescents who receive transfer assistance services, including referral coordination and transfer summaries shared between pediatric and adult providers. (Measures the reach and volume of transfer assistance activities)
  • Number of adolescents who receive integration into adult care services, including self-care skills assessments and orientation to adult care systems and providers. (Measures the extent and depth of support provided for successful integration into adult care)

Quadrant 2:
Measuring Quality of Effort
(“How well did we do it?”)

  • Percent of adolescents who receive personalized and comprehensive transfer summaries that effectively communicate their health history, needs, and preferences to adult care providers. (Measures the quality and patient-centeredness of transfer documentation and information exchange)
  • Percent of adult care providers and staff who receive training and ongoing support to deliver developmentally appropriate and welcoming care to transitioning adolescents. (Measures the capacity building and responsiveness of adult care systems to meet the unique needs of adolescents)

Quadrant 3:
Measuring Quantity of Effect
(“Is anyone better off?”)

  • Number of multi-community partner transition coalitions and improvement networks formed, involving Title V programs, pediatric and adult healthcare systems, payers, professional societies, and patient support groups, to advance best practices and policies for transfer and integration. (Measures the level of collective action and system-level collaboration)
  • Number of quality improvement initiatives, research studies, and data-sharing agreements implemented to evaluate and enhance the effectiveness and efficiency of transfer assistance and integration services for adolescent populations. (Measures the commitment to continuous learning, evidence-based practice, and data-driven improvement in transfer and integration)
  • Number of adolescents from various communities who receive transfer assistance and integration support, leading to reduced gaps in care and improved health outcomes. (Measures the impact of transfer and integration services on advancing health)
  • Number of preventable adverse health events, care disruptions, and social-emotional crises avoided among adolescents as a result of effective transfer coordination, communication, and integration into adult care systems. (Measures the impact of transfer and integration services on preventing costly and harmful outcomes for adolescents and their families)

Quadrant 4:
Measuring Quality of Effect
(“How are they better off?”)

  • Percent of transfer assistance and integration services that are designed and delivered in partnership with adolescents, families, and community members. (Measures the level of authentic engagement and co-production with populations in the development and implementation of transfer and integration interventions)
  • Percent of Title V program resources and investments dedicated to supporting transfer assistance and integration infrastructure and workforce capacity building in communities experiencing the greatest need. (Measures the resource allocation and capacity building efforts for transfer and integration)
  • Percent reduction in gaps in transfer and integration outcomes (e.g., care continuity, patient experience, health status) between adolescents who receive transfer support and those who do not. (Measures the impact of transfer and integration services on differences in transition success and well-being)
  • Percent of adolescents, particularly those with complex health and social needs, who report increased resilience and self-determination in their adult care settings as a result of the support, and empowerment provided through transfer assistance and integration services. (Measures the impact of transfer and integration on promoting positive youth development and social-emotional well-being)

Note. When looking at your ESMs, SPMs, or other strategies:

  1. Move from measuring quantity to quality.
  2. Move from measuring effort to effect.
  3. Quadrant 1 strategies should be used sparingly, when no other data exists.
  4. The most effective measurement combines strategies in all levels, with most in Quadrants 2 and 4.

Learn More. Read how to create stronger ESMs and how to measure ESM impact more meaningfully through Results-Based Accountability.

References

1 Paepegaey AC, Coupaye M, Jaziri A, Menesguen F, Dubern B, Polak M, Oppert JM, Tauber M, Pinto G, Poitou C. Impact of transitional care on endocrine and anthropometric parameters in Prader-Willi syndrome. Endocrine Connections. 2018;7(5):663-672.

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U02MC31613, MCH Advanced Education Policy, $3.5 M. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.